Lived Experience Matters: Fetal Alcohol Spectrum Disorders (FASD) through the Voice of a Self-Advocate
Live Virtual Zoom Training
Sponsored by The Florida Center and the State of Florida, Department of Health
Date: Wednesday, September 16, 2026
Time: 12:00-1:30pm EST ( 11-12:30pm CST, 10-11:30am MST, 9-10:30am PST)
Cost: FREE
DESCRIPTION:
This powerful and insightful training offers participants a unique opportunity to understand Fetal Alcohol Spectrum Disorders (FASD) through the lived experience of a young adult diagnosed with Fetal Alcohol Syndrome. Co-presented by Alex and his mother, this training highlights both the challenges and strengths that come with the diagnosis, as well as the importance of empathy, communication, and support in the journey of individuals with FASD and their families. Don’t miss this self-advocate and his mother sharing about their experience and Alex’s unique brain.
The Florida Center for Early Childhood operates the only FASD Diagnostic Clinics in the State of Florida, now located in Sarasota, Orlando and the panhandle.
Takeaways:
- Experience a powerful firsthand account of what it’s like to live with FASD.
- Recognize the importance of self-advocacy and empowering individuals with FASD.
- Gain meaningful insight into the challenges and strengths of individuals with FASD.
- Discover the importance of family support, patience, and communication in fostering growth and resilience.
- Learn strategies for professionals and caregivers to better understand individuals with FASD.
TRAINERS:
Alex Carver
FASD Self-Advocate
Alex Carver is a 21-year-old FASD Warrior. Adopted from Russia at 13 months old, Alex has spent hundreds of hours in occupational, speech, music, and equine therapy. He recently graduated from high school and is learning how to drive. He’s also working with Vocational Rehab to find a job he will enjoy. He is witty, charming, and a bit mischievous. He lives at home with his Mom, Dad, Cat, Dog and Turtle in sunny Florida. Getting along with this crazy over-protective parents isn’t always easy, but they all love each other deeply.
Pam Carver, FASD Caregiver, Intake Coordinator at The Florida Center
Pam’s background is in business management, but she was woefully unprepared for her FASD journey. Her adopted son Alex was diagnosed with FAS at age 3. Now he’s 21 years old. Pam has spent countless hours learning about FASD and helping Alex live his best life. Pam is the Intake Coordinator for our FASD Clinic’s Sarasota Office. When not helping families and advocating for Alex, Pam enjoys gardening and drinking coffee.